GSTDTAP  > 资源环境科学
DOI10.1289/EHP2378
Conducting Science in Disasters: Recommendations from the NIEHS Working Group for Special IRB Considerations in the Review of Disaster Related Research
Packenham, Joan P.1; Rosselli, Richard T.2; Ramsey, Steve K.2; Taylor, Holly A.3,4; Fothergill, Alice5; Slutsman, Julia6,7,9; Miller, Aubrey8
2017-09-01
发表期刊ENVIRONMENTAL HEALTH PERSPECTIVES
ISSN0091-6765
EISSN1552-9924
出版年2017
卷号125期号:9
文章类型Review
语种英语
国家USA
英文摘要

Research involving human subjects after public health emergencies and disasters may pose ethical challenges. These challenges may include concerns about the vulnerability of prospective disaster research participants, increased research burden among disaster survivors approached by multiple research teams, and potentially reduced standards in the ethical review of research by institutional review boards (IRBs) due to the rush to enter the disaster field. The NIEHS Best Practices Working Group for Special IRB Considerations in the Review of Disaster Related Research was formed to identify and address ethical and regulatory challenges associated with the review of disaster research. The working group consists of a diverse collection of disaster research stakeholders across a broad spectrum of disciplines. The working group convened in July 2016 to identify recommendations that are instrumental in preparing IRBs to review protocols related to public health emergencies and disasters. The meeting included formative didactic presentations and facilitated breakout discussions using disaster-related case studies. Major thematic elements from these discussions were collected and documented into 15 working group recommendations, summarized in this article, that address topics such as IRB disaster preparedness activities, informed consent, vulnerable populations, confidentiality, participant burden, disaster research response integration and training, IRB roles/responsibilities, community engagement, and dissemination of disaster research results.


领域资源环境
收录类别SCI-E
WOS记录号WOS:000413792800007
WOS关键词CONFIDENTIALITY ; CERTIFICATES ; HEALTH
WOS类目Environmental Sciences ; Public, Environmental & Occupational Health ; Toxicology
WOS研究方向Environmental Sciences & Ecology ; Public, Environmental & Occupational Health ; Toxicology
引用统计
文献类型期刊论文
条目标识符http://119.78.100.173/C666/handle/2XK7JSWQ/24069
专题资源环境科学
作者单位1.NIEHS, Clin Res Branch, NIH, DHHS, POB 12233, Res Triangle Pk, NC 27709 USA;
2.Social & Sci Syst Inc, Durham, NC USA;
3.Johns Hopkins Bloomberg Sch Publ Hlth, Dept Hlth Policy & Management, Baltimore, MD USA;
4.Johns Hopkins Berman Inst Bioeth, Baltimore, MD USA;
5.Univ Vermont, Dept Sociol, Burlington, VT USA;
6.Childrens Natl Med Ctr, Off Res Regulatory Affairs, Silver Spring, MD USA;
7.George Washington Univ, Sch Med & Hlth Sci, Dept Pediat, Washington, DC 20052 USA;
8.NIEHS, Off Director, NIH, DHHS, POB 12233, Res Triangle Pk, NC 27709 USA;
9.Natl Inst Hlth Clin Ctr, Dept Bioeth, Bethesda, MD USA
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GB/T 7714
Packenham, Joan P.,Rosselli, Richard T.,Ramsey, Steve K.,et al. Conducting Science in Disasters: Recommendations from the NIEHS Working Group for Special IRB Considerations in the Review of Disaster Related Research[J]. ENVIRONMENTAL HEALTH PERSPECTIVES,2017,125(9).
APA Packenham, Joan P..,Rosselli, Richard T..,Ramsey, Steve K..,Taylor, Holly A..,Fothergill, Alice.,...&Miller, Aubrey.(2017).Conducting Science in Disasters: Recommendations from the NIEHS Working Group for Special IRB Considerations in the Review of Disaster Related Research.ENVIRONMENTAL HEALTH PERSPECTIVES,125(9).
MLA Packenham, Joan P.,et al."Conducting Science in Disasters: Recommendations from the NIEHS Working Group for Special IRB Considerations in the Review of Disaster Related Research".ENVIRONMENTAL HEALTH PERSPECTIVES 125.9(2017).
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